When Jordan was first born, the first thing I did was look for websites where other parents were talking about limb differences. At first, there weren’t many. But the number has grown through the years – most are included on the right-hand side of this website. I haven’t included the various places I’ve worked with on prosthetics, so if you’re interested in that, feel free to email me with questions: jen [at] bornjustright.com.
If you are unsure about your child’s difference and you don’t know what to do… My best piece of advice is to talk to other parents. When your little one is born missing a limb or two or four (or pieces of limbs and fingers) you can’t even imagine how he or she can grow up to be independent. But here’s the wonderful thing about a congenital limb difference: Our kids don’t know life with those pieces of limbs! They adapt because they have to. I watched Jordan grow and meet every milestone. She met some of them differently than you and I but she did all of them so wonderfully. I never spent a single moment dwelling on what she can’t do. I have left everything open to watch her find ways to be able to do everything. At ten years old she can do almost everything… even with tricky snaps on her jeans. She’s an expert at shoe tying. She swings on the swing. She can skip and loves to dance. She does CrossFit! She plays softball and basketball. She’s so active. It’s awesome to watch. When she needs help, she asks for it. Most of the time she’ll spend the extra time and figure out a way to do it on her own. (She’s pretty hard headed.)
My main goal is to make sure Jordan is able to do anything and everything in life. That’s why we work with prosthetics and continue to work with occupational and physical therapists. I’m making sure she never falls behind! She’s also becoming an advocate by encouraging other kids to get active. She’s also learning how to share her design ideas to improve her life and the lives of others. Together, we hope to help build a squad of design ambassadors who can help change the way the world creates products. Wouldn’t it be incredible if there was more mindfulness toward design that includes and benefits more people? It’s possible and we can all work together to make it happen.
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I’m also spending more time sharing and connecting on the Born Just Right Facebook page.