I’m a co-moderator for a support group that’s been known as the ABS Support Group for a long time. ABS stands for Amniotic Band Syndrome — a diagnosis many kids get when they’re born missing pieces of limbs. It’s what my doctor said immediately. I’m now very skeptical with that diagnosis… And I lean more towards a vascular incident that restricted Jordan’s blood flow just at the moment that it affected her arm. Anyway, this week we announced that ABS Support is now called Sammy’s Friends in honor of the founder of the group’s daughter.
Anyway, this has been one of the online groups where I’ve found a lot of support. I tend to talk a bunch with the parents on the group and in the last few months, I’ve become a moderator on there with six other moms. During that time, we’ve just gone through a big brainstorming process to name the group differently so we can produce business cards and other stuff so more parents can learn about our group and find that there are a lot of adults, parents and kids who can offer support, advice and friendship.
So, one of the moderators put together this really cute logo and we’re close to putting together a cool business card. I can share it at doctors offices and prosthetic groups around my area so I can reach out to more kids and parents in town. I’m pretty excited.