Today, runners from around the world will show how the Boston Marathon can continue even after last year’s terrible bombing near the finish line. The terrible attack killed three people, injured 275 people and left 16 people in need of prosthetics to keep moving. National organizations really stepped up and offered help to those in need after a horrible situation.

A year later, many of the bombing survivors are still working their way back into living typical lives… those with and without prosthetics. The Boston Globe reports how recovery is slow and difficult for so many people. I’ve followed a handful of organizations as they’ve offered support to the new amputees and I’d love to share some updates.

Challenged Athletes Foundation
Challenged Athletes Foundation (CAF) immediately mobilized to offer support for the victims of the bombing. The organization provides grants for adaptive devices that help physically disabled people get active. It has provided support and access to prosthetics for the victims. It continues to fundraise for the Boston bombing victims and for thousands of others. If you ever need inspiration, just follow the stories the organization shares on its Facebook page. CAF has 50 fundraising runners in the Boston Marathon today. Also, anyone who wants to help raise money for the organization can use the Nike+ running app on their phone, add #strongereveryrun in the run notes. Nike will donate $1 for every mile run on April 21st. (I ran five miles this morning!) If you are interested in helping with the CAF Boston Strong fundraiser, click here to donate. Here’s a look at how the organization is making a difference:

Wiggle Your Toes
The Founder of Wiggle Your Toes reached out to victims of the Boston bombing immediately. As a double above-knee amputee himself, Aaron Holm understands what it’s like to recover from a traumatic experience. The organization if offering emotional and financial support to the Boston victims. It also continues to raise money for others in need of support. If you can support the organization, here’s a link to their donation page. Check out how the organization is help support Jeff Bauman, who lost both legs above the knee from the bombing.

Amputee Coalition
Support after an amputation can be so important. Heck, I appreciated support as a parent of a limb different child. The Amputee Coalition is organized to help coordinate support for traumatic amputees. The organization’s Boston-based amputee mentors visited the bombing victims while they were in area hospitals. The support made an impact and a number of the Boston survivors are now mentors to other amputees. Listening to Adrianne Haslet-Davis talk about the support she is given and reading how Heather Abbott is offering support is truly inspiring. I’m so glad the Amputee Coalition makes it easier for traumatic amputees find help. (I need to continue working with the organization to help make it a better system to offer support to families of congenital differences as well.) There are so many ways to give to the Amputee Coalition, here’s a list of ways.


I am so thrilled to watch the rapid growth of 3D printing for prosthetics. There is an ongoing community called e-NABLE on Google+ and Facebook that is connecting engineers with 3D printers with children and adults with hand differences. That combination is making it possible for more and more people to get the opportunity to try using prosthetic fingers created with the help of a 3D printer. (If you want to learn more details behind the e-NABLE group, read an older blog post I wrote on the organization.)

The Rochester Institute of Technology plans to take that production to a new level. During its yearly Imagine RIT event, engineers plan to demonstrate and prototype an e-NABLE Service Station. Adults and children are invited to visit Rochester, New York to experience how the service station works during the event. My mind is a bit blown with this awesome idea. I can’t wait to see what comes of it. The idea is when a person with a hand difference walks up to the service station, he or she can get measured and arrange to have a custom hand designed.

It’s an awesome opportunity to pitch in on an effort to make it even easier for people with hand differences to get access to 3D printed hands. If you live close by and are interested in attending, all you need to do is RSVP to the Facebook event. Or you can email the founder of e-NABLE, John Schull.


The Magic of Amy Purdy

April 17, 2014

Being different and overcoming obstacles sometimes brings out the very best in us. I tell Jordan and Cameron that often when we face tough stuff in life. We can choose to let it make us sad, or we can find the good in the bad and keep living a positive life. I know those words [...]

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Showing it Off on the Dance Floor

April 16, 2014

I mentioned earlier this week how proud I am at the risks Jordan takes on a regular basis. One activity that’s been a constant since Jordan was two and a half years old is dance. I tend to just consider is an assumed activity until I step back and watch her. That’s exactly what I [...]

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Two Hands Are Not For Everyone

April 15, 2014

My journey with prosthetics started with I was five months old.  My parents knew that I was going to need to learn how to crawl, and realized early on that I would need a prosthetic limb in order to do so without major difficulty. They took me to Shiners Hospital in Chicago and had me [...]

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Trying to Make Teeth Brushing Fun

April 14, 2014

This paid post is brought to you by the new free Oral-B Disney Timer App as part of a Type-A Parent Community Sponsored Post. Tooth brushing has never been so important in our household. Jordan has more and more grown up teeth and Cameron has braces. It’s so important to make sure the kids brush [...]

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Taking Risks All the Time – Top Five Favorites

April 14, 2014

Over the past week, Jordan returned to softball practice and it made me think back to a bunch of different times when Jordan has surprised me by taking risks with her activities. Why not share my top five favorite risk taking moments so far in Jordan’s life? Here you go. Number 1: Rock climbing Jordan [...]

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Finding Community When It Is Everywhere

April 11, 2014

I’ve mentioned a few times before how I founded Born Just Right because I didn’t have many resources when Jordan was born. All I had was my doctor using the term “amniotic band syndrome” and sent me on my way after we left the hospital. We knew Jordan’s joints were loose (they still are) and [...]

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Music Continues to Rock

April 10, 2014

Jordan is now into her second semester of piano. It is so cool to watch her figure this out. Her teacher has been so cool about helping Jordan learn how to read music for the right and left hand. She has found a consistent collection of beginner music that only needs one note at a [...]

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BEARS Fun For All and Tickets for St. Louis

April 9, 2014

There are two things you will easily find our family doing when we are crashed out on the couch together – We’re either watching a Disney movie or a nature show on TV. It’s super cool when those two things merge… Like with the new movie, Bears. Disneynature releases the movie on Earth Day, April [...]

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That Time of the Year

April 8, 2014

It’s that time of the year when all of Jordan and Cameron’s activities collide. Jordan has dance, physical therapy, piano, softball and all kinds of birthday parties scattered throughout this month. Each activity has a reason: Dance is something Jordan loves and it helps her work on her core strength, physical therapy is another important [...]

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A St. Louis Running Adventure

April 7, 2014

Jordan is lucky enough to go to a school with a committed running club. We meet before school on Tuesdays and Thursdays. This year, Jordan signed up for two big challenges: To participate in three 5K races during the school year and run enough miles to match a full marathon. So far, Jordan has participated [...]

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You can do anything you want, as long as you want it badly enough!

April 4, 2014

I’d love to introduce everyone to Sarah Johnson. She is new to writing for Born Just Right and I’m thrilled to have her join us with her one-handed perspective! ——– Running across this blog happened by chance. I was browsing the Nubability Athletics website searching for a way to get involved. That’s how I found [...]

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A One-Handed Pep Talk

April 4, 2014

In the last month, Jordan has spoken twice about her limb difference to kids and adults. It’s pretty impressive. A few weeks ago, Cameron’s basketball coach asked me if Jordan would be willing to talk about living with a limb difference and how it doesn’t hold her back. He hoped she could help motivate the [...]

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Limb Loss Awareness Month is also for Limb Differences

April 3, 2014
Thumbnail image for Limb Loss Awareness Month is also for Limb Differences

This is the fourth year the Amputee Coalition has hosted Limb Loss Awareness Month in April. To me, this month’s theme has always felt a little detached from my feelings about limb differences since Jordan was born with a limb difference not a “loss” since Jordan never lost a thing. So I dug a little [...]

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